Eylem Seç
Stress, Coping, Stigma and Acculturation in Arab American Caregivers of Children with Autism and Other Developmental Disabilities
Başlık:
Stress, Coping, Stigma and Acculturation in Arab American Caregivers of Children with Autism and Other Developmental Disabilities
Yazar:
Habayeb, Serene I., author. (orcid)0000-0002-7631-6971
ISBN:
9780438008175
Yazar Ek Girişi:
Fiziksel Tanımlama:
1 electronic resource (121 pages)
Genel Not:
Source: Dissertation Abstracts International, Volume: 79-10(E), Section: B.
Advisors: Brendan Rich Committee members: Sandra Barruecco; Sarah Dababnah; Barry Wagner.
Özet:
Research has indicated increased levels of stress in caregivers raising children with an Autism Spectrum Disorder (ASD), compared to caregivers of typically developing (TD) children and children with other developmental disabilities (DD; Dabrowska & Pisula, 2010). However, this research has not been conducted in many specific minority ethnic or cultural groups, such as the Arab American community. The Arab American community is one of the fastest growing yet least studied ethnic communities in the U.S. No research has been conducted specifically exploring ASD in this population (Al Khateeb, Al Hadidi, & Al Khatib, 2014a). The current study explored acculturation, stigma, stress and coping factors in Arab American caregivers raising children with ASD.
Twenty Arab American caregivers raising children with ASD and four raising children with other DD completed an online questionnaire, using standardized measures to explore the main constructs: stress, coping, supports, stigma and acculturation. Only parents of children with ASD were analyzed further in the study. Nine of these participants completed a follow-up phone interview and provided greater detail about their survey responses. Regression analyses were conducted to explore predictors of our main constructs and a grounded theory approach was used to analyze the interview data.
Parents reported that raising a child with ASD felt "somewhat" to "very stressful" overall. They rated the diagnosis, creating and/or finding opportunities for their child, and meeting the needs of other children, as top sources of stress. Significant predictors of stress included dissatisfaction with informal supports and spousal support. The top coping styles endorsed were acceptance, active coping and planning. Participants rated having "moderate" to "pretty large amounts" of support from their spouse. Doctors, school staff and ASD societies were rated as the top forms of formal support; and, female friends, spouses and children were rated as the top informal supports. The quality of formal and informal supports was rated as satisfactory. Although perceived stigma fell in the low to moderate range, increased stigma significantly predicted increased stress. Acculturation scales examining acculturation related to social interactions indicated slightly greater assimilation compared to separation and a slightly greater integration over marginalization. In addition to these findings, during interviews, participants discussed the importance of family and factors related to gender roles including the gendered responsibilities of mothers versus fathers.
This is the first study to explore the experiences of Arab American caregivers raising children with ASD. While many findings were consistent with the literature on stress and coping in caregivers of children with ASD, our study highlights unique circumstances faced by Arab American caregivers. For example, acculturation data revealed that those who were more separated from American culture were more likely to rely on informal supports such as family and friends, indicating that they may not access formal services in the way that those from the majority culture do. While stigma was overcome by many participants in this sample, they discussed how salient it still is in the community, and how it impacted them in the past. Results of this study have the potential to increase clinicians' awareness and cultural responsiveness in order to support Arab American families of children with ASD.
Notlar:
School code: 0043
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Yer Numarası | Demirbaş Numarası | Shelf Location | Lokasyon / Statüsü / İade Tarihi |
---|---|---|---|
XX(680419.1) | 680419-1001 | Proquest E-Tez Koleksiyonu | Arıyor... |
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